April 14, 2007

Elephants beware


Schuyler's Dragon
Originally uploaded by Citizen Rob.
Julie and I spent the afternoon yesterday in a class learning how to use Schuyler's Big Box of Words in its most advanced, 84-button configuration. (She's been using it in a 45 button setup since shortly after we arrived in Plano, along with most of the rest of her Box Class.) Her team announced a couple of months ago that she needed a more advanced vocabulary and wanted to begin the transition to 84, but it's a slow process. The buttons are in different places, there are more of them to remember, and even the language works in significantly different ways.

Schuyler is the first kid in her class to make the jump to 84 buttons, so when a training session was set up in Plano specifically to cover this new configuration, Schuyler's whole core team showed up to learn how it works. What a difference from when we were in Austin/Manor, right? Schuyler's Manor teachers couldn't be bothered to show up for training on a device they'd never even seen before; Schuyler's Plano teachers know these devices like no one I've ever met but still show up for more. Moving to Plano is turning out to be one of the best decisions we ever made, and that's without even taking into account its monkey-loving citizens.

While we were taking the class, Schuyler's teacher informed us that she'd scored a 100% on her weekly spelling test that morning. This wasn't the first time, either; Schuyler has found a school subject that she can obsess over, and that's spelling. It's awesome. I have to confess, it is my not-so-secret dream for her to be a writer when she's older. I know that sounds like typical parent "pushing my kid to do what I do" behavior, but it's not like I'm trying to get her to follow in my footsteps by playing the accordion or taking over the family funeral home business. Writing skillfully will help her in almost any line of work and/or personal fulfillment she chooses. Don't look at me like that.

So yes. Schuyler loves spelling, and she's getting good at it. What she can't do, however, is write, at least not very well. Her polymicrogyria affects her fine motor skills, and the easiest way to see the results of that impairment is in her handwriting. She can write the words, but just like her speech, it can be close to unintelligible. We work with her on it, but it's a losing battle and everyone seems to know it. (We practice using huge sheets of paper; even then, she almost always runs out of paper before she runs out of word, and ends up bending the path of her alien hieroglyphs in strange directions, rendering them unreadable but strangely artistic, almost beautiful, even.)

But because of her AAC device (the one that her Austin/Manor teachers told us she would probably never be capable of using, remember), it doesn't matter. Schuyler can spell her words there, and her teacher can print it off so she can have something tangible on which to write 100%. Yeah, how do you like my kid NOW?

(There's an interesting new development with Schuyler's BBoW, by the way, but I think I'm just going to spring it on you soon, so watch for that.)

We decided to reward her spelling prowess by taking her to her favorite eatery, the Purple Cow (as always, also referred to as "the Purple MILF" because of all the Plano moms who go there to be seen), and then to the toy store. Part of the reason was to buy a birthday present for one of her classmates, but I also told her to pick something out that she wanted since she was quickly becoming a little spelling Jedi.

She walked down the aisles, and inevitably we stepped up to the pink zone, the aisle on which Barbie and all her little girl issues lay waiting to tempt Schuyler once again.

But this time, she merely glanced down at the wall of frou-frou and then kept on walking.

Because Schuyler is in one of her monster phases again.

(We already had an idea that she was moving in that direction over dinner. Call it a hunch.)

Last summer, on the occasion of buying Schuyler the coolest dinosaur toy ever created by the human race ever, I wrote an entry called Schuyler's New Monster. It wasn't even the first time I ever wrote about her fixation with giant scary monsters. Back then, I ended the entry like this:

I've written at length about her affinity for King Kong and dinosaurs and big scary beasts that scare most kids. Schuyler faces her own monster without flinching, and I truly believe that in her imaginary world, she goes into battle against that monster with her sword drawn and pink hair flying out Valkyrie-like from under her viking helmet, and she does so with a small army of her own monsters at her back.

As we left Toys-R-Us, she played with her new monster, watching him writhe and roar with a look of phony fear and rapt amazement. She held him up so he could see the lightning flashing in the distance and threatened other drivers with his big teeth and nasty disposition. Then she hugged him and kissed him and put him on the seat beside her, insisting that we buckle him in. Nothing staves off extinction like good common safety sense.

Now, as I write this, he is laying on the couch, covered by the blanket that she brought for him and tucked him under. I swear, he looks almost happy.


Tonight, it was a dragon.

I have to admit, it is a very cool dragon (in nerd-speak, it's a "Wyvern"), part of a whole collection (based on the Dragonology books) that treats them like living creatures being studied like something on a National Geographic special. This particular dragon apparently lives in Africa, is fifty feet long, and eats elephants, hippos and rhinos.

Schuyler was fascinated by that detail. A dragon that eats elephants? The whole way home, from the back seat, she kept signing "elephant" and asking me if that was really true. Her little mind was blown by something that big and bad. After we got home, she flew her dragon around the apartment, as if he was looking for something. When I asked what he was searching for, she said "elephants".

When she asked, I told her it was true, by the way. Perhaps I lied to my child, but I'll sacrifice Truth for Wonder every time. She'll get plenty of Truth as it is.

18 comments:

Donna said...

There was a "special" on Animal Planet two years ago about the evolution of the dragon (how almost every culture has some sort of dragon motif, etc) done in a very documentary/archaeological way. I still have it on my DVR because I'm a huge geek and absolutely enamored of dragons. If you'd like a copy, let me know. I'll burn it off and send it to you.

Rob said...

Oo! I think I caught the last part of that on the Discovery Channel a week or two ago, and couldn't find a rebroadcast on the dvr. Schuyler wasn't here, and I thought it was a borderline tragedy that she missed it.

I'll bet she would LOVE a copy! That's very cool of you.

kris said...

Schuyler will LOVE it. I was working at Discovery when it was produced and went to the premiere of "Dragons." They do some really really cool stuff and I'm glad that Donna has it for you. If you have trouble getting it from her, let me know and I'm happy to get a copy from my friends at Discovery. I'm assuming she has the book already? I have some extra copies of that lying around too.

daisy said...

I caught part of that dragon special a while back. It was really cool, and really well-done.

Are you ever tempted to take one of those spelling tests and mail it to the idiots from the old school district? I would be.

Rob said...

Are you ever tempted to take one of those spelling tests and mail it to the idiots from the old school district? I would be.

You have no idea...

liz said...

I love that dragon. I do a writing activitiy on Fridays in my second grade class where I have the kids write what they learned during the week and what they can do to be better learners. Yesterday one little girl wrote, "I learned all about where dragons live and what they eat." Cool, I say.

Rebecca M said...

I'm constantly amazed by the way Schuyler conquers her obstacles in her own way at her own pace. I remember a while ago you mentioned she was having trouble with spelling, and to hear that she now excels at it is just... awesome.

Anonymous said...

Are you ever tempted to take one of those spelling tests and mail it to the idiots from the old school district? I would be.

You have no idea...

Mail it? Break in and plaster the walls with them!

ChrisTheRed said...

So when does Schuyler start using the BBoW to write her own blog?

wifemotherme said...

Is she old enough to see that movie "Dragon Heart" yet? The most beautiful monster movie ever made.

misdee said...

Hi

i am a new 'reader'(via moreenas) and have to say that dragon is rather impressive. My husband is a big dragon nut, this place is over run with them. Unfortunatly my girls dont share the obsession, they like pretty dainty girly things. Though i think the 3rd cherub may be following in daddys obsession as she tried to climb the shelves to reach the dragons.

Take care.

Sarah

ps have linked to your blog on todays post on mine, hope you dont mind

rachel said...

Oh we looove the Dragonology book! We actually have 2 copies because of an Amazon wish list screw up if Schuyler would like one.

Didn't know there were toys - adding that to the girls' birthday gift ideas...

Kinzie said...

I can spell like nobody's business. I wish I got paid more for having that skill.

Wyverns can be nasty opponents, depending on your experience level.

Annie D said...

your daughter signs as well ? I was wanting to ask you about that .. if you and your wife had to make a decision between signing and the aac device ? my son is younger.. 4. we made the decision recently between sign and aac to go with sign. his school wants to think about adding aac in addition to sign in the next year. but right now he has a sign interpreter at school with him. anyway.. was just wondering if you had to chose between the two ? and what made you chose aac ? or to what extent does she use sign ?

Rob said...

Schuyler was learning sign language (in her case, Signed Exact English, not ASL) before we discovered AAC and began making the move to transition to her device. She hasn't really learned much more sign language since then, but she retains maybe thirty signs.

For Schuyler, there were two reasons we chose to focus on AAC rather than sign for two main reasons:

1) Polymicrogyria affects not only her speech but also her fine motor skills. As a result, her handwriting is hard to read, and the details of her sign language is clumsy and hard to discern. The same issues she has with speech would always be present with sign as well.

2) With her signs, she can only communicate with someone else who knows sign language, and Signed Exact English is less commonly known that ASL. With the device, she can communicate with anyone who understands English.

Annie D said...

(I am sorry I am new to blogging and I am not sure if there is a way to reply to your comment)


We were worried about this issue with my son, (will he be able to sign issue?) because he has global dyspraxia (as well as speech apraxia) that affects his motor skills- but this dyspraxia does not affect him as severely as his speech disabilties do. He has proved that he is able to sign, despite the dyspraxia. He signs over 500 words. I see how in your daughter's situation AAC is the obvious choice.
My son's school wants to meet again in 6 months to discuss adding the AAC in addition to the ASL interpreter. I worry it might be a bit excessive- especially since he is still only 4 and we think he still has a chance to speak.. so he is expected to attemp to speak while signing- would be kind of awkward to be expected to attempt speaking, sign and use the AAC device simeoultaneously. (I am thinking, no way could I do that!) I think it would be more approrpriate to keep with signing and speech attemps and his therapies.. then in a few years if his speech looks like it will not develop, then add the AAC device. If Liam never speaks, my hope for him is to have both modes of alt. communication so he can go back and forth as he sees fit... but it seems kind of odd to me to do both while still not giving up on speech. But on the other hand- might be good to get it while the school district wants to pay for it! Because next year we will be back in Texas and I am not sure if Texas special ed funding is as good as New York state. I am assuming not because I read of the difficulties you had in getting the device for your daughter. Is the device she uses called the Big Box of Words ? Like that is the brand ? My son's school thinks the Vanguard brand would be good for him.. I forget that might be the model.. or the brand.. I don't know.
Sorry about all the ramble ramble rambling.
I apologize to anyone who actually read this far!

KimS said...

Rob, I think you should DEFINITELY send a copy of some of Schuyler's work back to her old teacher(s), special ed team, and administrators.

Not so much as pure neener-neener (although there's that). But maybe there's a little boy that'll show up next year that needs his teachers to believe the best of his ability. Maybe seeing Shuyler's success would help them give their best to him-- and many after him.

(And you could write the hell out of the letter that you'd mail with it.)

grandefille said...

Oh yeah with the neener-neener. I think you could just send a print-out of this post, particularly the "Schuyler is the first kid in her class to make the jump to 84 buttons" part (my favorite of all time), notarized by her teachers, with a fancy-pants cover letter that says, simply, "Suck it, y'all."

And FYI, I know y'all don't watch much network TV and godforbid cartoons, but I've caught something a couple of times on NBC Saturday mornings called "Jane and the Dragon" () that's pretty interesting. Short version: Jane is medieval lady-in-waiting, finds it boring, wants to be a knight, gets the chicks-can't-do-that response, saves the prince from a dragon, makes friends with the dragon, gets to be a knight in training. CGI and kind of weird visual perpective, but interesting.

Almost forgot to say how much we admire and adore y'all. Continuing to do so.

Kisses from Tennessee!