"Help! My pediatrician's not listening to me"
Of particular interest to me (and relevant to Schuyler's story) was this part, near the end:
"Parents of children with severe disabilities are often the experts on their children. They're with them all the time."
The trick here, she says, is to stand firm, even when you know you're annoying the doctor.
"You have to let go of the desire to be the good patient and make everyone like you," she says. She recommends questioning the doctor thoroughly. For example, Green could have asked why the doctor didn't want to use one of the other potent antibiotics.
Rackner says patients can keep in mind stock phrases they can use to make the conversations easier.
For example, she says, one way Green could have started the conversation is: "I honor your years as a practicing physician; I hope you honor my years as this child's parent 24/7."
Tell me about it.