January 28, 2013

A Life's Work

Over at Support for Special Needs, I discuss what has become of me in a post that I could have called "What I Want to Be When I Grow Up", if not for the fact that I am in fact quite old.

January 24, 2013

Two things. Three, if you count the chinchilla.

Two quick orders of business today.

First of all, I want to very publicly thank Dr. Janice Light from Penn State's Department of Communication Sciences and Disorders. I had the opportunity to speak to her class this morning about Schuyler and AAC and the experience of being a parent wielding a rubber sword. One of the very best things to come out of writing my book has been the opportunity to meet and speak with the young people who are heading out into the world to make a difference, to make THE difference, in the lives of people like Schuyler. They are my heroes, and it really is an honor and a privilege to share my own small insights with them.

Secondly, I'm happy to announce that I will be contributing to the new special needs blog, The 504, over at Parenting.com. You can read my introductory post, Meet Schuyler, Monster-Slayer. (It's sort of a "Hi, this is what I'm all about" post, so it's not exactly going to be new stuff for regular readers.) I'm happy that they've started this new project, and even happier that they've invited me to be a part of it.

Okay, that's it. Oh, and here's our new chinchilla, because as you may or may not know, chinchillas are exceptionally cool. (My Instagram and Facebook feeds are mostly about chinchillas these days, in no small part because it makes me happy, imagining everyone saying "What's with all the goddamn chinchilla stuff?" I gotta be me.)

Hello, Frida.

January 21, 2013


Over at Support for Special Needs, I discuss a movie we watched over the weekend, Now is Good, and how one of the central relationships of the story, that between a terminally ill teenager and her gradually breaking father, spoke to me in a way that is no doubt familiar to most special needs fathers.

January 14, 2013


Today on Support for Special Needs, I discuss the societal battles that those of us in the disability community fight over and over, even the ones we know we'll never win, as if we're building and rebuilding sandcastles that we know will be destroyed by the tide every night.

I'm not going to lie. It gets old.

January 7, 2013

"Once more unto the breach..."

Today on Support for Special Needs, thoughts on Schuyler's return to school after the break, and how that maybe feels a little different in some ways for those of us with kids with disabilities.

If you're a parent in a similar situation this week, you know I'm feeling what you're feeling. And I know that it's... complicated.