tag:blogger.com,1999:blog-22878815.post3458558717180912933..comments2009-05-22T16:08:44.662-05:00Rob Rummel-Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comBlogger77125tag:blogger.com,1999:blog-22878815.post-4305039713270843932009-05-22T16:08:44.662-05:002009-05-22T16:08:44.662-05:00I've heard about your blog before and now I had the time to read it. I'm so glad I did. I think all of this is amazing. I'm so happy that Schuyler has a pink BBoW and that it makes her that happy.<br /><br />Keep on doing what you're doing:-)Loverly Lupie Mehttp://www.blogger.com/profile/11598195441280225078noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-23004061010567624302009-04-14T20:10:00.000-05:002009-04-14T20:10:00.000-05:00SHE is so cool! Thank you for making me smile tonight :) Like everyone else here, I love seeing your beautiful monkey so happy.Shannonhttp://www.blogger.com/profile/15877280963223497537noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-41758555439676191132009-04-05T16:27:00.000-05:002009-04-05T16:27:00.000-05:00Schuyler has a beautiful voice! I loved getting to hear her talk so much! This device is really awesome, too. It's interesting - I saw a news piece on ALS on the Today show last week and that insurance companies were realizing that AAC devices were medically necessary, etc. Yet schools (I teach special education) don't realize the necessity of them, or when they provide them, provide the dinosaurs and make them so hard to use...anyway. With kids being so used to technology today, it seems that the computer- based devices would make more sense to use. It's frustrating. I know you all fought long and hard for Schuyler, and I thought of you when I heard that on the show.<BR/><BR/>Schuyler seemed to be pretty understandable, even to readers who aren't used to hearing her. Is she getting more intelligible with age, or is that just luck/people trying to understand her?<BR/><BR/>I want a cool pink BBoW...Kimhttp://www.blogger.com/profile/09762896766377039541noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-80222038889543152892009-04-05T14:00:00.000-05:002009-04-05T14:00:00.000-05:00Pink technology! I love it.<BR/>I just found a splendid article about a young man who is autistic, has Down Syndrome, and is nonverbal, using something like the BBoW, and he's been able to open his own business. He's got parents like you, who refused to take the official verdict on him for an answer.<BR/>(http://news.yahoo.com/s/usnews/20090403/ts_usnews/how1autisticyoungmanrunsabusiness)Emmet of Arolishttp://www.blogger.com/profile/03465851029524516587noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-80910525895215415052009-04-03T13:32:00.000-05:002009-04-03T13:32:00.000-05:00I am so excited for Schuyler! That's so great!!!!!Jessnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-1930039068879203992009-04-03T10:32:00.000-05:002009-04-03T10:32:00.000-05:00I, like the transcriptionist person deeper down in the comments, can't wait till she can use text to communicate vs. icons. Hope she is working hard on keyboarding and using word prediction!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-31084524896033023032009-04-01T22:45:00.000-05:002009-04-01T22:45:00.000-05:00Rob, that was just unbelievable to see. And inspiring. I hope Max is able to navigate his speech device like that sometime. And I just love how chatty and expressive Schuyler is. May she use this, as my mother would say, in the best of health. Damn. I hate it when I quote my mother.Ellenhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-67206735435952652582009-03-31T15:46:00.000-05:002009-03-31T15:46:00.000-05:00Schuyler is so cool. :)swervehttp://swerve.livejournal.com/noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-10506963857344022942009-03-30T18:48:00.000-05:002009-03-30T18:48:00.000-05:00Robert, I loved it, and I even showed my husband too. :-) We watched the video farther down on the page too - the one where she's five years old and showing off her skills for those stupid people in the school district. My husband kept saying, "Wow!! She is so SMART! Look at her go!"<BR/><BR/>So anyway, I'm coming over here to tell you that I've written a <A HREF="http://nonfictionlover.today.com/2009/03/30/book-review-schuylers-monster-a-fathers-journey-with-his-wordless-daughter-by-robert-rummel-hudson/" REL="nofollow">review of Schuyler's Monster</A> on my nonfiction book review site. After finishing the book, I of course had to check out your blog, so here I am. Thanks for the fantastic read. :-)<BR/><BR/>HavsHavahttp://nonfictionlover.today.comnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-58928534265627525852009-03-30T17:38:00.000-05:002009-03-30T17:38:00.000-05:00What I meant by "her own voice" was the ability to change the voice of the woman who says the words in the machine into Schuyler's voice. All she'll have to do would be to say a syllable or two into a mike in the machine. See, I probably got a little into science fiction there. Or I'm a genius.People in the Sunhttp://www.blogger.com/profile/06961234839608654790noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-53434884601032155102009-03-30T13:54:00.000-05:002009-03-30T13:54:00.000-05:00iPhone to the rescue! People who are unable to view, if you have an iPhone, or know someone who does, the video is viewable on the iPhone. <BR/><BR/>Thank you for sharing, Rob. So sweet!daisyjo21http://www.blogger.com/profile/01418478199076709949noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-29765386626233439942009-03-30T10:51:00.000-05:002009-03-30T10:51:00.000-05:00<I>"Much better than the slow Vantage Lite shown here, and it doesn't come with the burden of Minspeak. Check out tobiiati.com for a real device, and really learn the power of computing and AAC."</I><BR/><BR/>I smelled a sales pitch above, and sure enough, according to LinkedIn.com, the poster is the marketing communications manager for the firm. Heehee.<BR/><BR/>What energy and confidence your Schuyler exudes in that short video! Sometimes a picture really is worth a thousand words.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-1716675100748297952009-03-29T23:17:00.000-05:002009-03-29T23:17:00.000-05:00Rob,<BR/><BR/>I read and loved the book, but I haven't really kept up with your blog until recently. I'm cuerious though, and wondered if on a normal day at home, does Schuyler use her BBOW or does she just talk to you and Julie verbally? I do remember that she uses some sign language too, so maybe that's added into the mix. Does the BBOW allow her to really describe emotions, frustrations, etc. with much detail? Perhaps those thoughts need to be written or typed at a computer?<BR/><BR/>It's hard for me to imagine--I'm a professor, and I think best as I talk. I wonder if Schuyler will be a writer like you, working out her thoughts as she writes. <BR/><BR/>She's so precious. What a beautiful child!<BR/><BR/>LauraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-2916199644740968752009-03-28T15:00:00.000-05:002009-03-28T15:00:00.000-05:00The name "Pinkessa" cracked me up. Over the years I've named most of my assistive devices and computers, most notably the wheelchair named The Tank. Pinkessa has such flair!Michellehttp://www.disablednyc.com/noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-65677829437858918752009-03-28T11:57:00.000-05:002009-03-28T11:57:00.000-05:00Thanks for sharing, Rob. That video made my day. She is a delight. While I realize that everything I could understand was in context, "I'm not a monkey" was awesome! This device definitely looks less cumbersome than the last...and let's not forget the fact that it's pink. I hope Schuyler continues to love it.<BR/><BR/>(As an aside, I can see why Schuyler, especially right now, might get frustrated with the device in conversation. Obviously, her brain moves more quickly than her fingers can navigate the BBOW. I hope the new shiny pink gets her really invested.)krishttp://www.blogger.com/profile/03000832911239038894noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-61068158639336876062009-03-28T11:28:00.000-05:002009-03-28T11:28:00.000-05:00Well, I'm a huge believer in Minspeak, so we're going to have to agree to disagree. It works fantastically for her, and I think her success speaks for itself, so to speak.Rob Rummel-Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-40832569087738976982009-03-28T11:24:00.000-05:002009-03-28T11:24:00.000-05:00She would love the new C8. Much better than the slow Vantage Lite shown here, and it doesn't come with the burden of Minspeak. Check out tobiiati.com for a real device, and really learn the power of computing and AAC.Thomas Nordennoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-84869412499905414132009-03-27T22:41:00.000-05:002009-03-27T22:41:00.000-05:00I can't view the video either. Tried IE7 and Firefox. It's not on your end, Rob. I can't get it to play from the YouTube site either.Paradisohttp://www.blogger.com/profile/11359712808734217922noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-47530212609848743922009-03-27T22:18:00.000-05:002009-03-27T22:18:00.000-05:00Okay, I just tried embedding it again, see if something's different now. If not, I don't know what to tell you. Some people are seeing it and others aren't. I see it just fine.Rob Rummel-Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-58065811806088787992009-03-27T22:08:00.000-05:002009-03-27T22:08:00.000-05:00WAAAA<BR/><BR/>"Video is no longer available"<BR/><BR/>Pinkessa!Liz Ditzhttp://www.blogger.com/profile/03455722013211350247noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-75182667278796169262009-03-27T21:56:00.000-05:002009-03-27T21:56:00.000-05:00i have it showing as unavailable as well... bummerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-55560182501223802072009-03-27T21:07:00.000-05:002009-03-27T21:07:00.000-05:00THANK YOU!That is an adorable daughter you two have. She could do modeling - she a naturalBarbara from bostonnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-80559778114067280862009-03-27T18:23:00.000-05:002009-03-27T18:23:00.000-05:00Great video, and I've really been enjoying this blog. Have you heard about the Open Source Icon-to-Speech project?<BR/><BR/>http://www.olpcnews.com/software/applications/free_icon-to-speech_open-source_speech_for_disabled.html<BR/><BR/>If it takes off, many more kids will have access to something like Schuyler's big box, which would be great.<BR/><BR/>I also wonder if you've thought about teaching her steno at some point. Right now it's mostly used by stenographers (including ones like me, who transcribe college classes for Deaf and hard-of-hearing students), but I think it's got enormous potential for people with manual dexterity but no speech capabilities. Basically, it allows someone to produce fluent English text at the same rate it would take to speak it -- up to 225 words per minute. Unfortunately it's mostly restricted to proprietary hardware and software at the moment and so it's tremendously expensive to get someone setup with a working system, plus there aren't currently portable stenographic systems that are text-to-speech ready right out of the box. But in the next ten years or so, I see the field really opening up, and if Schuyler becomes frustrated with the limitations icon-based speech, she might prefer a quick syllablic entry system to the painstaking letter-by-letter entry system that qwerty typing requires. But the Big Box is definitely a wonder. Thanks for giving us all the words and videos. You've got quite a kid there.Ploverhttp://www.blogger.com/profile/16494847224950297255noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-22425598641419515672009-03-27T13:41:00.000-05:002009-03-27T13:41:00.000-05:00Refresh, try a different browser, restart, blah blah blah, no matter what, I can't see the video. Pfft.Aimeenoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-84661167485652273822009-03-27T13:32:00.000-05:002009-03-27T13:32:00.000-05:00saved this post in my reader for last and it was totally worth the wait and my 100% attention. <BR/><BR/>Last week I had a child with autism come up to me with his box and ask for cheese crackers. How could i say no to something that he obviously took great effort to convey to me? <BR/><BR/>I bet you can't say no a lot either ;)Daniellehttp://www.blogger.com/profile/00293144856124041861noreply@blogger.com