tag:blogger.com,1999:blog-22878815.post6211064144514807976..comments2012-01-17T20:55:28.121-06:00Rob Rummel-Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-22878815.post-87585878770861889372012-01-17T19:46:10.239-06:002012-01-17T19:46:10.239-06:00Hugs to all of you. All you can do is be honest and loving with her. Poor thing, this just sucks! Thank you for being open enough to share with us. Seriously, I count you guys as heros of mine.mooserbeanshttp://www.blogger.com/profile/13741457687176429345noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-90417877103371201912012-01-17T08:39:51.517-06:002012-01-17T08:39:51.517-06:00Please give her a huge hug from all her online buddies----Mary Alicehttp://www.blogger.com/profile/02924970170874152074noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-56803551458122163002012-01-16T09:26:56.181-06:002012-01-16T09:26:56.181-06:00Live is an adventure and it takes us to a lots of unknown places.... some places we want to go and others we didn&#39;t know that exist (for us). I moved to the town of Holland (no kidding) as I got pregnant. Now I have to learn about this new place with my baby girl that has pmg(I had no idea and was not prepared...I felt like I lost my Baby...today I feel I received a special gift)<br />I can&#39;t stop but think about what we might face in her future...and I&#39;m afraid. Praying... and enjoying every minute of the day as if it could be the last one because I love her so much. Schuyler is an inspiration to me; she seems so gifted in many ways. You&#39;re doing a great job raising her!!!Jennifer our special gifthttp://www.blogger.com/profile/11970652004095793232noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-15903660847798268292012-01-16T08:49:01.721-06:002012-01-16T08:49:01.721-06:00My heart hurts everytime I read about Schuyler having a bad day. I noticed on FB that you said you weren&#39;t going to post about it anymore because it was a downer (your word, not mine), but I hope that you do. Those who care about Schuyler (and we&#39;re in abundance) want to know how she&#39;s doing and support all of you when times are tough -- and celebrate with you when the monster loses out once again.StaceyEsqhttp://www.blogger.com/profile/03100246280019995999noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-35151307613007006632012-01-16T08:45:14.588-06:002012-01-16T08:45:14.588-06:00I think you told her exactly the right thing. You&#39;re raising a lovely, gracious girl.Kimhttp://www.blogger.com/profile/09762896766377039541noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-78443028491457733072012-01-16T08:44:36.971-06:002012-01-16T08:44:36.971-06:00I think you said exactly the right thing. What a lovely, gracious daughter you&#39;re raising.Kimhttp://www.blogger.com/profile/09762896766377039541noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-14231817045630274092012-01-16T07:41:59.970-06:002012-01-16T07:41:59.970-06:00Brave little soldier. <br /><br />It still breaks my heart to recall the look on my son&#39;s face when told to swallow foul-tasting medicine or to inhale mist from a tube to keep his lungs clear. I kick and scream when things don&#39;t go my way, so how could he be so patient, so resigned, so <i>noble</i> in the face of this suffering?James A. Brownhttp://www.blogger.com/profile/12580984579089010427noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-68325188351529304792012-01-16T06:30:09.817-06:002012-01-16T06:30:09.817-06:00Kelly nailed it (for me) in her last sentence. :-( I&#39;m sorry Schuyler&#39;s seizures seem to be coming more frequently and making their influence felt. I have the utmost faith that you and Julie are doing everything in your power to fight this particular monster; I&#39;m putting my money on you, J, and Schuyler.Niksmomhttp://www.blogger.com/profile/14715465327343655483noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-51138320921667237812012-01-16T04:41:37.162-06:002012-01-16T04:41:37.162-06:00You said the right thing. She knows she is loved and listened to, that is the most important. My hugs and sympathies on this storm. My brother some some mild issues, though never seizures, from being premature.TheCrankyOnehttp://www.blogger.com/profile/01153519622682366690noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-57385552045558691832012-01-16T03:16:08.391-06:002012-01-16T03:16:08.391-06:00It really sucks being dealt a a bad hand by life, but I see more grace and wisdom in how she copes with it than I see from most people twice her age.Beckyhttp://www.blogger.com/profile/06022685611227255848noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-88382948780209348982012-01-15T23:41:51.738-06:002012-01-15T23:41:51.738-06:00Big, big sigh. I am sorry.<br /><br />And your girl&#39;s eyes speak so clearly.Elizabethhttp://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-28991767536098798772012-01-15T23:34:24.092-06:002012-01-15T23:34:24.092-06:00I honestly think that&#39;s all you can say. Honesty and love. You are wonderful and I&#39;m sorry Schuyler is dealing with these damned seizures.jenleereeveshttp://jenleereeves.myopenid.com/noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-8231673212026248442012-01-15T23:23:50.975-06:002012-01-15T23:23:50.975-06:00What a rough day. I&#39;m sorry that Schuyler didn&#39;t feel up to puppies, and that she feels like her brain hates her.<br /><br />My 17 year old daughter has had Complex Partial epilepsy for almost 9 years now, and she gets very frustrated with it, too, though she doesn&#39;t have Schuyler&#39;s other frustrations to deal with.<br /><br />Being the parent of someone who is neuro-atypical sometimes feels like a life of apologizing for not being able to kiss it and make it better.:/Kellyhttp://www.blogger.com/profile/07521092530423578707noreply@blogger.com