tag:blogger.com,1999:blog-22878815.post7999092984017274412..comments2008-06-02T06:46:02.923-05:00Rob Rummel-Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-22878815.post-71135132284835422352008-06-02T00:01:00.000-05:002008-06-02T00:01:00.000-05:00You guys are so lucky, she is wonderful. I sat and cried when watching the interview. It is all very overwhelming isn't it? You are familar with my son Daniel (2 1/2), you did a post on him a while back, he has the same diagnosis your daughter has, unfortunately Daniel has some of the other things that come along with his PMG (seizures, cerebal palsy, developmental delays). It is so inspiring to see how well she does with her device. We are getting Daniel's device in the next couple of months, most likely the same one Schuyler has, and I can't wait to see how well he does. I can only hope that he is able to fight his monster as successful as Schuyler seems to be doing with hers!Melaniehttp://www.blogger.com/profile/14976460220405392152noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-31067949841327453422008-05-21T15:39:00.000-05:002008-05-21T15:39:00.000-05:00That was such a wonderfully well done piece and it was great to see Schuyler in action. Although a tad cheesie, I did love that they used her dinosaurs in the segment too. Everytime I see those dinos in a toy store, I think of her.Erinhttp://www.blogger.com/profile/07325224715022828659noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-74715006341246487632008-05-21T15:34:00.000-05:002008-05-21T15:34:00.000-05:00This is the first time I've heard Schuyler's voice and the beauty of it made me cry.Jhttp://www.blogger.com/profile/07597528411559389685noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-53018277754993630762008-05-19T12:21:00.000-05:002008-05-19T12:21:00.000-05:00I live in Arlington, TX so it was on Fox, I think the 9 0'clock news. Hope this helps!Hollyhttp://www.blogger.com/profile/06461570847275489646noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-5589367458605640982008-05-18T21:54:00.000-05:002008-05-18T21:54:00.000-05:00Tonight? Really? Where did you see it? (You can email me if you don't want to advertise where you live here.)Robhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-19472083673273686822008-05-18T21:47:00.000-05:002008-05-18T21:47:00.000-05:00I've been reading/lurking around your blog since my interest in medically necessary blogs entered my life when our daughter was born. Love it, love your truth, spunk and general love of your child. And what'ela know I was watching the news tonight and there you were!<BR/><BR/>Caleigh's Blog<BR/>www.hollydgray.blogspot.comHollyhttp://www.blogger.com/profile/06461570847275489646noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-70364939713189595702008-05-18T10:53:00.000-05:002008-05-18T10:53:00.000-05:00I don't even know what to say - it's like meeting an old friend you haven't seen in a long time, and then realizing that you'd never met. Part of me feels that I know you, and know your family, but it's only through your blog and book. Thank you for sharing Schuyler.Anniehttp://www.blogger.com/profile/01048658142680350189noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-11045219132950451322008-05-18T08:53:00.000-05:002008-05-18T08:53:00.000-05:00I loved it.. thanks for sharingLaurihttp://www.blogger.com/profile/01734353279885248086noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-23225487048186237402008-05-17T18:55:00.000-05:002008-05-17T18:55:00.000-05:00The beauty of her spirit and the purity of your love both shone through so clearly. Beautiful and moving.Niksmomhttp://www.blogger.com/profile/14715465327343655483noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-62521875133068126002008-05-17T09:12:00.000-05:002008-05-17T09:12:00.000-05:00So many times over the years, when I read about Schuyler, I cried. This piece made me smile. <BR/><BR/>She is an amazing girl!Christyhttp://www.blogger.com/profile/03372202061072373348noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-60679302795897296182008-05-17T02:23:00.000-05:002008-05-17T02:23:00.000-05:00Wonderful. She is so stinkin' tall, isn't she?! Goodness. I never pictured her so lanky. <BR/><BR/>Thanks for sharing all of this, Rob. It is so wonderful to see.Jolenenoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-27314376566575010312008-05-16T22:23:00.000-05:002008-05-16T22:23:00.000-05:00The video took forever to load on my computer, but it was totally worth the wait. Wow.<BR/><BR/>Now if you'll excuse me, I need to find some kleenex.gypsyjrhttp://gypsyjr.livejournal.com/noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-18705827581871846622008-05-16T21:18:00.000-05:002008-05-16T21:18:00.000-05:00The news segment was very good...Schuyler's spirit spoke loud and clear!Galenhttp://www.blogger.com/profile/02133622477462629829noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-82792590818446561972008-05-16T18:55:00.001-05:002008-05-16T18:55:00.001-05:00That was a really excellent story. Thank you for sharing a link so those of us outside TX could watch too.Debhttp://www.blogger.com/profile/08092319375289515376noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-16536854219992063702008-05-16T18:55:00.000-05:002008-05-16T18:55:00.000-05:00Thank you for sharing that. I'm in agreement with everyone who said it was great to see Schuyler in action! I'm actually in the middle of your book right now and think it's amazing.Amandahttp://www.blogger.com/profile/17272234396737679356noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-81454152594259758332008-05-16T18:38:00.000-05:002008-05-16T18:38:00.000-05:00Long term lurker emerging to say how much I liked the clip :) Her personality and spirit shone through so clearly!Hellynoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-10620033326742526872008-05-16T17:49:00.000-05:002008-05-16T17:49:00.000-05:00It was such, such a joy to finally really hear Schuyler's voice and see her laughing right along with her movements - she has such a strange kind of delicate sense of motion and it was so touching to see it in action. Great clip! Thanks for sharing it with us. :)Kelseyhttp://www.blogger.com/profile/10725950596343398197noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-89614180248474186972008-05-16T17:34:00.000-05:002008-05-16T17:34:00.000-05:00That was a great segment. Y'all need to be on 20/20 or 60 Minutes or something so we can see even more!Lisahttp://www.blogger.com/profile/01436560278189909922noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-74317785931374362392008-05-16T17:12:00.000-05:002008-05-16T17:12:00.000-05:00That piece was beautiful. Thanks for the link. And after reading the book I now want to read it all over again with the beautiful image of your family on the bench in my mind.bunnybeahttp://www.blogger.com/profile/12069415551810534995noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-67001074363982565432008-05-16T16:28:00.001-05:002008-05-16T16:28:00.001-05:00That was lovely!Laurahttp://snerkology.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-2788273690325223762008-05-16T16:03:00.000-05:002008-05-16T16:03:00.000-05:00Love it... especially the baby photos! Looks like Schuyler got a manicure, so sweet!Single Mom Seekinghttp://www.blogger.com/profile/04846340433536492232noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-3859606868339134962008-05-16T15:50:00.000-05:002008-05-16T15:50:00.000-05:00Wow, they did a nice job. What a wonderful portrayal of Schuyler...she is delightful.Tammyhttp://www.blogger.com/profile/01552885290222479144noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-4439011537384236102008-05-16T13:41:00.000-05:002008-05-16T13:41:00.000-05:00That was awesome. Seriously. She's magical and illusive and impossible to take your eyes off. And I love the use of the T-Rex in the piece.krishttp://www.blogger.com/profile/03000832911239038894noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-44326780642266766932008-05-16T13:01:00.000-05:002008-05-16T13:01:00.000-05:00Thank you! That was great!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-51551158411150242672008-05-16T12:00:00.000-05:002008-05-16T12:00:00.000-05:00Wow that is a great Segment.. I am right in the middle of your book now.. it gives us a better persective on just how great and happy Schuyler is!Shellynoreply@blogger.com