tag:blogger.com,1999:blog-22878815.post8923020332636950325..comments2008-01-22T19:35:18.778-06:00Rob Rummel-Hudsonhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-22878815.post-3361545611995615752008-01-22T19:32:00.000-06:002008-01-22T19:32:00.000-06:00As a mother of a 21 month old with polymicrogyria, I can also relate to the ups and downs of the medical world and Early Intervention. I spend so much time hoping that someone will tell me she will be ok and this will all just go away. Then I realize that I've spent more of her young life worrying and trying to make her better, rather than enjoying these years with my daughter.Shannonhttp://www.blogger.com/profile/02159557379056929489noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-86757355290292542532008-01-22T19:27:00.000-06:002008-01-22T19:27:00.000-06:00As a mother of a 21 month old daughter with polymicrogyria, I am anxious and excited to read your book. I keep hoping someday someone will tell me she is okay and her future will be like other children her age. I try to enjoy her each day as my daughter and not who she will be in the future. It's so hard sometimes to just let things happen. It's always- what should I be doing now to help her development.Shannonnoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-13527388758391223572008-01-03T13:22:00.000-06:002008-01-03T13:22:00.000-06:00So so true. My daughter also has a brain malformation (I've written to you before) but is doing beyond better than what all of our doctors initially led us to believe. I have had to fight for medications that ultimately worked when her doctors said they wouldn't and ask for tests that were deemed unnecessary (but that did reveal the problem). I don't claim to know more than her doctors but in the end they are human and if I'd sat back and let them make all the decisions I don't think she'd be doing as well as she is today.<BR/><BR/>I cannot wait to read your book!lisanoreply@blogger.comtag:blogger.com,1999:blog-22878815.post-13609034322901997832008-01-03T12:40:00.000-06:002008-01-03T12:40:00.000-06:00Not sure why, it seems to be working fine for me. Maybe YouTube was having a brain fart.Robhttp://www.blogger.com/profile/15462451435441751837noreply@blogger.comtag:blogger.com,1999:blog-22878815.post-58218738661694144322008-01-03T11:53:00.000-06:002008-01-03T11:53:00.000-06:00Got a "sorry video is not availble" messageWifeMotherMehttp://www.blogger.com/profile/03824969853891532111noreply@blogger.com