My first book, Schuyler’s Monster: A Father’s Journey with His Wordless Daughter, tells the story of raising a little girl with a disability and learning to become the father she needs. It was published in February 2008 by St. Martin's Press and was released in trade paperback in January 2009.
In February 2008, my article about Schuyler, “Love Beyond Words,” was published in Good Housekeeping. Schuyler’s Monster was reviewed in People (3.5 out of 4 stars) and was excerpted in Wondertime in March 2008.
I've been writing online since 1995. Our story has been featured in articles in the Austin Chronicle (August 2000), the Irish Times (summer 2003), the New Haven Register (April 2003), March 2008), the Dallas Morning News (March 2008), the Fort Worth Star-Telegram (March 2008) and the St. Paul Pioneer Press (June 2008). We've been been featured on American Public Radio’s "Weekend America", WFAA’s "Good Morning Texas" and KERA’s "Think with Krys Boyd".
I'm represented by Sarah Jane Freymann of the Sarah Jane Freymann Literary Agency in New York.
I spent my early years in Texas. I grew up in the West Texas oil town of Odessa, and attended college at the University of Texas at Arlington, studying music and English. During that time, I worked as a professional freelance trombonist and music instructor.
At the age of twenty-nine, I left it all behind and moved to Kalamazoo, Michigan to marry Julie Rummel. A year later, we had a daughter, Schuyler Noelle, and moved to New Haven, Connecticut to work for Yale University.
It was at Yale that Schuyler was diagnosed with Bilateral Perisylvian Polymicrogyria, a rare neurological condition that left her unable to speak. For the next few years, I used my online journal and blog to chronicle Schuyler's fight for a normal life, and also my ongoing quest to become, against all my flaws and self-doubts, a good father and fierce advocate for a unique little girl.
I now live with Julie and Schuyler in the north Dallas suburb of Plano, Texas, where Schuyler attended a special public elementary school class for children who use Alternative and Augmentative Communication devices. She now attends middle school and is working towards transitioning to a more traditional education in the coming years.