July 27, 2015

Rough Numbers

Today at Support for Special Needs:
Excerpt: 
The article suggests that with the passage of the ADA, many were led to believe that the struggle for disability rights was over, when in fact it was just beginning. It's more like people with disabilities who have been fighting for equality were finally told "We recognize the battle you've been waging, now here's a bazooka." Or perhaps more accurately, "Here's a rock."

July 20, 2015

Steps and Stumbles

Today at Support for Special Needs:
Excerpt: 
How do you discipline a kid for whom her own actions are as inexplicable to her as they are to you? How do you move forward when the lessons built into the situation haven't been learned, by any of the parties involved? How do you face a future where your kid's independence is due to be recognized by the law far earlier than is appropriate, or even feasible? And how far should you go to take pieces of that legal independence away from them? You can tell yourself it's for their own good, and you can even mean it and be completely correct, but that doesn't diminish the feeling that you're taking something precious away and stealing from them the thing that they, and you, have always valued and dreamed of the most.

July 13, 2015

Twelve Years

Today at Support for Special Needs:
Excerpt: 
Schuyler's monster doesn't have a proper birthday. Perhaps it could be said to share Schuyler's. Even that doesn't feel quite right, because it was there from very early on, probably the second trimester or so, a shadow unseen inside her tiny developing mind. She wasn't yet a baby, but her monster was already a monster, only waiting to be brought into this world with the sole purpose in life to bedevil the life of my daughter.

July 7, 2015

Future Perfect

This week at Support for Special Needs:
Excerpt:
I feel fear for Schuyler, so much so that it weighs down on me, probably more than most people realize and sometimes more than I think I can handle. The future is an oppressive thing for me, but every now and then, with Schuyler's help, I can allow myself to imagine that it might not be bad, that she might have a shot at being happy, and maybe, just maybe, so might I.

June 29, 2015

Assembling Schuyler's Armor

Today at Support for Special Needs:
Excerpt: 
When things go wrong, when Schuyler meets up with someone who doesn't understand or care, when she hears the words meant to demean her or is simply treated with disregard, I think I've taken that as a larger affront than it probably is. They're not just hurting her feelings or standing in her way. I think on some level, they're tearing down her world. And that's something I simply can't let go unchallenged.

June 22, 2015

Untold Stories of the Secret Heart

Today at Support for Special Needs:
Excerpt: 
There's so much that Schuyler is going to learn about her emotions, and the emotions of others. There's so much I want to tell her, the lessons I've learned the very hard way in my own life. I want to explain to her that her heart is fragile, but it's also tough, and that may not seem to make sense but one day she'll get it, when she thinks it's too broken to survive until she wakes the next morning and the morning after that and realizes that it perseveres. Somehow I want to tell her that she'll have people in her life who don't like her, and that's just part of life, but the hits that'll leave a mark won't come from them. They'll come from the people she loves, and who maybe even love her, but who won't be careful with her heart.

June 15, 2015

The Freedom of Summer

This morning at Support for Special Needs:
Excerpt: 
Summer is Schuyler's time to be herself. She doesn't know what that means, not exactly, and there is always the possibility of change, something that scares the adults in her life a lot more than it scares her. But given her own space and her own pace, she's got a pretty fair chance of beginning to put all the pieces together, and preparing for the chaotic and unpredictable life that awaits her.

Filing STAAR test results in the appropriate place.