October 21, 2014

Deflated

Today at Support for Special Needs:
Excerpt: 
Today, I’m tired of the walking. I’m tired of screwing up, and I’m tired of other people treating Schuyler like a cute little pet who might pee on the carpet, rather than a complicated and nuanced human being. My weapon is a rubber sword today, and it feels especially ineffective. I’m just going to sit for a while and see what happens. I wish I had something in my tank, and I’m sure I will tomorrow. But not today. Sorry.

October 20, 2014

Goodbye, Petey

Over the weekend, we said a sudden and unexpected goodbye to Petey, who had been with us since he was a tiny puppy in 2005.

Petey was a shy and sensitive dog (nonverbal, too, ironically) and he and Julie in particular loved each other deeply. If Julie was home, Petey was next to her; I was very much Petey's B Team. But if Julie wasn't around, Petey and I were play buddies, growly wrestlers and shameless dance partners. Petey left a very sad bunch of people and pooches behind him. It hit me last night that I'll never sing my "Petey Bo-Beety, the Petey Pop Pop" song to him again. He left a hole in this family that won't go away any time soon.

Goodbye, Petey. You were the sweetest and most steadfastly loyal dog ever.

October 13, 2014

The Path to Self-Advocacy

Today at Support for Special Needs:
Excerpt:
Schuyler is never going to be a confrontational self-advocate, I feel pretty certain of that. She shies away from conflict, even as she holds the grudges that she develops as a result of it. Her own sense of justice doesn't always trump her desire to navigate her life with ease. She loves participating in marching band, for instance, even as she feels slighted by how she's treated (and more to the point, sometimes dismissed) by her band teachers from time to time. She's not interested in taking a stand, so she endures what she perceives as slights and focuses on the fun she's having. Sometimes she's a little student of Zen, in a way that I wish I could be but never am.

October 10, 2014

Teaching Students to Self-Advocate

Amanda Morin and Robert Rummel-Hudson join The Inclusive Class Podcast this week! Amanda Morin is an advocate and author of The Everything Parent's Guide to Special Education. Robert Rummel-Hudson is author of Schuyler's Monster. Together, with Nicole and Terri, the conversation will be about teaching our student's to self-advocate - the pros, the cons, the pitfalls.


Check Out Family Podcasts at Blog Talk Radio with The Inclusive Class Podcast on BlogTalkRadio

October 6, 2014

An Extraordinary Story

Today at Support for Special Needs:
Excerpt: 
In the list of commemorative awareness months, October's got a lot going on. It's Down Syndrome Awareness Month, after all, as well as National Dyslexia Awareness Month, National Breast Cancer Awareness Month, National ADHD Awareness Month, National Domestic Violence Awareness Month, Spina Bifida Awareness Month, and National Disability Employment Awareness Month. October kind of feels like Awareness Awareness Month, to be honest. Relevant to my own life and my own personal perspective, along with all those worthy causes, October is also AAC Awareness Month.

September 29, 2014

Two Simple Experiences

Today at Support for Special Needs:
Excerpt:
Now that Schuyler is up to her eyeballs in high school life, marching band has become something of a sink-or-swim experience for her. This has resulted in a few stumbles, such as when she took the field at last week's football game with big floppy shoes that were not just untied but actually unlaced because she couldn't do it and, for whatever reason, she couldn't find anyone to help her while the band was getting into their uniforms. The new independent model of Schuyler 2.0 has some bugs to work out of the system, but she's getting there.

September 23, 2014

Lily Pads

Today at Support for Special Needs:
Excerpt:  
Today, I have a brief message specifically for the parents of kids with special needs. It's a message that parents of typical kids probably need to hear, too, but I kind of feel like they've got supports in place, strong ones with foundations rooted deep within our social structure. Of late, I've been watching as one special needs parent after another falters, and I've seen how tenuous their supports really can be. Their supports; OUR supports. I suppose my message to them is a message to myself as well.